Thursday, November 19, 2009
So, Rylie has surgery in less than two weeks and every single day I find myself back at the same place. Google. Each day I come up with new words, catchphrases and medical terms to describe Rylie's condition and each day I'm dismayed at how few results I get. With a condition like infantile esotropia (strabismus) there just isn't enough out there on the internets. I do know that 1% of all healthy, full-term babies born have the condition. Wow...she's in that 1%, that's amazing. I also know that this is likely a condition that will require our careful monitoring for many years. Will she gain binocular vision? Is her eye turning back in? Will it over-correct and turn out? Does she have equal vision in both eyes? I'm so thankful that in every other aspect of her health she is perfect, but I'm coming to terms with the fact that there is no quick fix. I just wish there was online support for parents like me that want to share surgery experiences or vision therapy success. In the meantime I'll continue to visit Google each morning in the hopes that I'll come up with a new search word that will unlock the online community for infantile esotropia and I'll kiss my perfect beautiful baby and in 2 weeks I'll have to put her and my trust in the hands of her surgeon and pray like there is no tomorrow.
Tuesday, November 17, 2009
- I suck at blogging apparently. I haven't written a post in weeks. I looooove reading blogs, why can't I write them consistantly?
- I can't watch Intervention or The Biggest Loser without crying. Just last week I cried at a Holiday Glade candle commercial. What's wrong with me?
- If I'm listening to music these days, it's Christmas music. I looooove Christmas.
- Rylie has eye surgery on December 1st and I'm SO scare and a little excited at the same time. I'm having a hard time coming to grips with the fact that we will be dealing with her strabismus for many years. Even if we get her vision perfect, we will have to have it checked at least every six months to make sure her eyes are starting to deviate again and that another surgery won't be required. I just want her to be able to see normally. God, I love her SO much.
- No one can convince me that there is a better Daddy than MY Dad. He is thoughtful and caring and loves my little Buggy more than I ever imagined he could.
- My husband gave Buggy a bath for the first time last night and it AMAZED me. He did great. Small things like sharing bathtime duties ROCK my world.
- My bebe just woke up...so that's all I have time for.